Is there hope?

Treatments are available for some metabolic diseases but the best treatment is early detection before damage occurs.
On a day to day basis, treatment may mean a reduction of certain food types in the diet  or large doses of certain vitamins that may prevent symptoms worsening.
But there is no cure for metabolic disease and available drug treatments for metabolic diseases are almost prohibitively expensive due to the rarity of the conditions.
In New Zealand, this can mean that while there is a treatment available, it is not provided here as the cost is too high for the government to fund.
The effects of a lack of treatment sees the impact of the disease increase with time. For a child, they cannot attend school due to fatigue. A wife may lose all social interaction with her peers. A father may lose all independence. Then they are forced to rely on their parents, or husband or partner or caregiver to help them walk, feed, even help to go to the toilet and shower. "Normal" activities cease to exist.
 

We've All Got This!!!

Every last one of us carries mutations in our genetic make up which may cause a disease in a new baby. It is no ones fault. It is beyond anyone's control when a child is born with a metabolic condition. The next person diagnosed could be someone you love. So if your nephew, or best friend's baby was given a metabolic diagnosis  - what would you do? 

Please help us help them.
 

What have we done so far?

• Supermarket vouchers have been given to a family with two sick boys whose mum wasn't eating so her boys did
  
• Petrol vouchers were given to a dad who had a son in the paediatric intensive care unit at Starship for the third time but needed to travel to the Waikato for work
  
• Warehouse vouchers were given to another family who were sharing mattresses on the ground so they kept warm
  
• Prescription fees and the excess costs of a liquid supplement were paid to ensure a man in his fifties was able to be well nourished as he had lost the ability to chew in the later stages of his life
  
• Contributions to funeral costs were paid to three families whose loved one had passed away in 2017
  
• A bike trailer was purchased for a child who was no longer able to fit in her pushchair but loves being in the outdoors.
  

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Link to Give-A-Little

Visit
http://givealittle.co.nz/org/easethesqueeze to donate

 Bank

Ease The Squeeze Charitable Trust
TSB Newmarket

 15-3968-0038792-00

Contact

Easethesqueezetrust@gmail.com

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